- My blood counts just came back. My red counts are back down again. So, at least it explains why I'm so tired and crabby. Epogen is my friend. Transfusions are not.
- I finally made a call to the attending nephrologist that saw me in the hospital last week to try and get the name of the Infectious Disease guy. He won't talk to me. He's evidently still bent that I wouldn't agree to surgery and hemodialysis or staying in the hospital for absolutely no reason an extra 5 days, just because he said so. So now, on Monday we'll call the attending Internist that was in charge of the case, and see if he knows the name of the ID guy. Then we'll call him, and have him call my team in Phoenix. And then? I'll take a long nap.
- And the really good news? The insurance just informed us they approved 2 days in the hospital. I was there 4. Yet another dragon to slay Monday.
Happy, happy, joy, joy.
But, I'm home and frankly at this point, that's all that matters.
Finally, finally got a call from my nephrologist. We never did hear from the Infectious Disease guy (ugh) so he did his own research.
At this point, I'll stay on both antibiotics indefinitely. I'll need blood-work every other day to make sure my levels stay out of the toxic range (no biggie, it gets me out).
But, and it's a BIG but ... if my dialysis bags stay clear I won't need to have surgery.
We will re-test my bags each week for signs of pasteurella. The plan is we should see weaker and weaker showings each time.
I will still have to be extra vigilant about exposure to alot of things, but for now the pets stay (although we cage everyone before we set up dialysis) and by next week if my blood counts are up and my white counts are down, I can leave the house for short periods of time. If I stay level, I can work up to longer times out and about!
This is great because mom and Sandy are due here the 2nd of next month and we really want to take a day trip to Sedona and show them around.
Hopefully, I'll be able to get back on the list for transplant in a few months. The last thing we can do is think about that while this silly bug is living well inside me.
So the current plan is continue on both antibiotics, gets lots of sleep (I'm taking 3-4 hour naps every day) and get better. Oh, and stay out of the hospital - cause that is no place to get a bit of rest.