I met the Physiatrist today. We had a really loooong talk about the last few months, as well as my goals are as far as wanting (really really badly - pardon my grammar) to be up and walking, and driving, again. She seems to have the personality of a piece of unbuttered toast, or say, a tree stump, but man oh man is she aggressive about her therapeutic regimes!
adding 3-4x wk of physical therapy to the 3x wk of pool therapy I already
have. This will include the physical therapy group, the hospital's rehab center and some rented equipment from the medical supply place in town. Basically, I will have (including home time) 112 physical therapy sessions (home and away) per week.
She is adding in dynamic knee braces on both legs that will click and lock in
straighter angles over time to slowly straighten my legs, and about a dozen or hundred other things besides.
Very aggressive, alot of work, but I am excited ...to get out of this wheel chair in the next few months!
On the transplant front, we had another candidate fall out of process today, so I have sent an email to the next person on the list to see if they are still interested.
The second candidate (who we were originally told had to wait until June to proceed) has been released to have blood drawn for cross-mating completed.
(To see the guidelines of Who Can be a Living Kidney Donor, click here)
We were also hit with another OHSU curve ball- after being told that all medical testing related to transplant is covered by our insurance, we found out that once someone passes cross-match they will need to have certain routine health screenings performed (For example, a woman's annual GYN testing).
Since these are considered "Routine" and should be done annually (or so), our insurance does not over these. So we will need to (and will be happy to) pay for these tests- either the co-pay for someone insured or the cash price for someone with no insurance.
Fortunately, we found ut now so we can add those amounts into our fund raising / personal savings account calculations, since these can be quite expensive for an uninsured donor. One of the required tests, a colonascopy, was one that John had just a few months ago and the bill we received (before insurance was billed) was for over $4,000.00.
We continue to believe that if we are to find the right donor, that God will be faithful and provide the finances to the penny of what our needs are.
Jonathan is doing well in track. He had his first meet the Friday before Easter and placed 2nd in the 4x100 relay, 4 in the 100 Meter and 200 Meter relay. He is sitting out the meet today due to a shin splint / possible stress fracture. He will be rooting his team on from the sidelines and providing lots of moral support. Go Lava Bears!!
That is about all from the House of Never a Dull Moment :)
What is going on in your house? Are ready for Easter?
(To request a copy of the flier called "Would You Be a Hero", please leave me a comment below, or emal at "firstname.lastname@example.org"