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March 20, 2008

Answers.

The insomnia is back. Full force.

The legs continue to weaken. I took another fall today.

Depression hovers at the corners.

Panic attacks seem to be a constant.

Ick. yuck.

And now, we now why.

Remember this post?

None of it was true.

Well, it was true- but for someone else. Not me.

When those numbers came through, I jokingly said to John, "Those are not my blood test results. The lab messed up." When we saw the Dr. and reviewed these numbers, we said the same thing to him. And to the dialysis nurse.

No one agreed.

So, we took hope.

And made medication and protocol adjustments accordingly.

Then, March monthly numbers came in.today, and were in the tank. Worse than they have been in the last year, with the exception of September when I was hospitalized.

Now, they're questioning whether the results last month were accurate.

So, we start over again. Rebuilding. But we start from a lower place.

Our appoitnments with the Mayo group are next week. We plan to have some serious discussions about care available in the Las Vegas area (about 2 hours away).Maybe even Los Angeles (about 4 hours away). How we will manage transportation twice a month for appointments, and all the rest will have to be figured out.  Especially since John will have to take that time off work to drive me.  And of course, we're still down to one car.

But, we see there is no choice.

This is something that should never have happened. 







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